Know Your Rights: Laws and Autism

If you or your child has autism, some of the most basic things you can study and learn are your rights. Every American citizen is protected under the constitution, and there are special laws that have been passed to help protect people with autism and other disabilities. By knowing the laws that protect you or your autistic loved ones, you can live in a world that provides better opportunities to everyone, regardless of not only disability, but also race, gender, and ethnicity. This is simply the first step to creating a more tolerant world in general.

The first law with which you should become acquainted is I.D.E.A., or the Individuals with Disabilities Education Act. The I.D.E.A. covers children ages 3 to 21 and provides autistic children with the special educational programs they need. The I.D.E.A. gives parents the right to be involved with education decisions concerning their child made by the school. Your child first needs to be assessed to qualify under the I.D.E.A., and this is best done by a private professional. In the end, your child has the right by law to receive a free public education that is appropriate for his or her skill level. If your public school has no such program, they are required to find one or create one at no cost to you.

Also become familiar with and knowledgeable about the American Disabilities Act. Under this act, discrimination due to disability is prohibited in the workforce, as well as with state and local government, public accommodations, the United States Congress, public transportation, and telecommunications. For example, if you are autistic, but have the skills to do a certain job, you cannot be refused the job because of your autism.

Other laws provide rights for people with autism so that they are constitutionally equal to others. One such law says that people with autism have the right to vote, and accommodations must be made so that this is possible. Another says that autistic individuals cannot be refused housing based on disability. Others provide equal rights in all other aspects of life, and these should especially be studied if your loved one with autism is in a health care institution. By knowing the law and how it applies to yourself or others with autism, you can be sure that justice is upheld. If you have questions, local law officials should be ready and willing to answer you or provide you with material to answer your own questions. Remember that ignorance of the law is not a valid excuse for anyone, so be an advocate for yourself or others with autism to prevent mistreatment.

Finding What Works: Dealing with Autism

When dealing with autism, just as in most other disorders, you will be faced with a number of treatment options for yourself or your child. These include treatments that are educational, behavioral, biomedical, nutritional, and sensory. Unfortunately, for patients who are not affluent or who do not have good medical insurance, the cost of these treatments can be pricier than what they can afford. One way to ensure that you or your child receives the best possible treatment for autism is to carefully monitor the effects a treatment has over time. By finding out which treatments work and which do not, you can stop paying for the ineffective methods and put more of your money into those which are creating a positive difference.

First, evaluate the abilities of the autistic individual before treatment begins. To do this, many services and organizations, including the Autism Research Institute, provide a checklist of evaluation points that focus on behavior and illnesses associated with autism. Autistic individuals tend to have increasing functionality as they mature, so remember that some of the positive effects in his or her life are simply due to the natural growth process. However, after two months fill out the checklist once again and compare it to the first. Are there any sharp positive increases in behavior characteristics? If so, this is more likely due to the treatment.

It is important to begin only one treatment method at a time. If you try everything at once instead, good and bad effects may cancel one another out, or even if the effect is totally positive, you will not know which treatment method is causing it and which are not doing anything. Of course, past studies can help you choose which methods to use, but because autism is an extremely complicated and individual disorder, these studies are not always helpful. Also, some treatments are so new that the studies done are only on short-term effects, which is usually unhelpful. Instead, it is a process of trial and error. Two months is a good amount of time to study the differences within an autistic individual trying a new treatment. After two months, if you do not see positive improvement, you can discontinue your use of that particular method and better invest your money in treatment options that work.

Remember that you do not always have to wait two months to make choices about whether to continue or discontinue a treatment method. If the side effects of a medication, for example, are interfering with the patient's life in an unbearable way, then you should discontinue the treatment. You can also make continual treatments based on immediate good reactions-just remember to continually monitor the various methods. Autistic individuals grow and mature just like everyone else, so treatments may stop working after time. Before trying anything new, consult your doctor to make sure you are being as safe and healthy as possible.

Eliminating the Source: What Causes Autism

Many parents hope that in finding a source of autism, this disorder can be cured or prevented. Unfortunately, scientists have yet to find one single reason why children develop autism. It is possible that someday autism will be linked to a specific gene abnormality, but the more likely source is not one thing, but a number of factors in a child's world. Autism cannot be prevented or cured, so the best we can do to help autistic children and adults is be understanding and willing to compromise to make the world comfortable for them and ourselves.

First off, there are certain things that do not cause autism, and these myths should be laid to rest immediately. Most importantly, bad parenting does not cause autism. In the past, mothers were blamed for traumatizing their children with cold parenting techniques, which was thought to lead to autism. This is simple not true. Autism is also not caused by malnutrition, although food allergies occur in my autistic children and some autistic children do benefit from taking daily vitamins.

There are many links between autism and the brain. Most people with autism have larger brains and they are "wired" differently than a typical brain. Differences occur in many parts of the brain, so it cannot be targeted to one specific brain malfunction overall, but rather a brain malfunction in general. Autistic children also show signs of an immune deficiency. Evidence in this study is not yet strong, but research is still being done. Many autistic individuals have other health problems related to immune deficiencies. Overall, these things all seem to point to genetics. Although autism is not the parents' fault, it is most likely that autism was found elsewhere on your family tree, and it is not uncommon for parents to raise more than one autistic child. Autism may also be linked to vaccinations, although this is still being highly studied. The benefits of vaccinations greatly outweigh the risks of them causing autism, so you should not deprive your child simply because you are fearful. Talk to you doctor if you have concerns about vaccinations.

Nobody knows what causes autism. Therefore, we can do nothing to prevent and cure it, but rather we can simply treat the autistic people in our lives with the best of our ability. Becoming educated in autism is the key-the more you know about the disorder, the better you can help individuals who suffer from it. Autism is a complex problem, and as researchers develop new understandings of the way it affects the body, better treatment options will become available, with the hope that someday we will be able to cure this disease.

Doctors and Diagnosing Autism

When a doctor first suggests that your child has autism, your immediate reaction might be disbelief and the urge to seek a second, third, or even fourth opinion. Because autism is so different in every child, it is a tricky disorder to diagnose. However, there are a few key ways in which doctors can efficiently identify autism in children, and if your infant or toddler is showing any of these signs of autism, you should visit your pediatrician immediately to express your concerns.

Autism occurs at a young age, rather than being a disorder an older child might develop. It is usually detected before the age of three, and many times much earlier. The first signs or autism are usually delays or regression in speech communication. Another early sign is abnormal behavior in group play situations and other social situations. The first step to diagnosing autism is a thorough physical examination as well as a review of family history by a specialist. Although your regular pediatrician will be able to spot unusual behavior, you'll want your child to be examined by a professional who specializes in autism and other similar diseases to make sure your child is properly diagnosed.

The next step includes hearing tests. Sine language and social skill delays could be due to inadequate auditory sensations. There are two types of auditory tests, one of which records the tones a child can hear and the other of which requires sedation and measures the brain response to certain tones. Of course, the first method is preferred, since it does not require any use of a sedative. After auditory testing, your doctor may encourage testing your child for Fragile X syndrome, which often times goes hand in hand with autism. Metabolism can also be evaluated. To do this, your doctor will need a blood or urine sample to analyze DNA.

An MRI or CAT scan can also be helpful in diagnosing autism. The important thing is to work with doctors you trust. Second opinions can be very helpful, but when your child has been diagnosed, stick with one doctor so that treatment is uniform and so that your child will get used to this person.  Autism is difficult to diagnose and even more difficult to treat, so remember that you should begin to learn as much as possible about the disorder as soon as your doctor identifies it. If you have yet to speak with your doctor about abnormal behavior in your child, do so immediately. By detecting autism early, you give your child a better chance at becoming a high-functioning individual with much more opportunities in life.

Dietary Concerns: Glutton and Casein

Autism is a disorder that must be treated with a variety of methods since there is no effective way to completely cure it. One of the ways you can help keep the symptoms of autism under control is by studying diet. Parents of children with autism have reported that by controlling diet, they see a significant difference in their child's behavior. Two of the main dietary concerns are glutton and casein.

Glutton is a substance found in many common food products, with wheat, rye, and oaks being the main culprits. Casein is found in dairy products, such as milk. If you or your child with autism eats many foods with these products in them, such as breads or cheeses, you may be able to better control autistic behavior by decreasing consumption of such foods.

The difficulty in digesting both glutton and casein comes from an inability to digestively handle the peptides in these substances. Since they are not broken down as in a normal body, these extra peptides are absorbed into the blood stream. Elevated levels of peptides disrupt major brain functions, contributing to the effects of autism. By cutting foods containing glutton and casein out of you or your child's diet, you can help the body with the process of breaking down the peptides present in the body. To see if you or your child has a high absorption rate of these peptides, your doctor can administer a simple urine test.

Speak to a nutritionist or doctor before making any major changes in your diet. When you decide to cut glutton and casein from your diet, do not attempt to do this all at once. Cutting anything from your diet suddenly is unhealthy, and your body could go into withdrawal. Instead, slowly begin reducing the amounts of breads, grains, and milk products until you are eating none. You doctor can provide you with a complete list of all the foods containing glutton and casein if you truly want to cut them all from your diet. However, it may be necessary to get the nutrients that you find in glutton and casein products in another way, such as with dietary supplements. Again, your doctor can help in this decision. Overall, maintaining a balanced diet is the healthiest thing to do. Leaving glutton and casein products out of your or your child's diet may help control autistic behavior, so it is an option that should be considered, but eating a healthy diet altogether is the best way to keep you and your family healthy.

Achieving Self-control with Autism

Self-discipline is a skill that most autistic children have trouble acquiring. This includes not only inappropriate outbursts, but also habits that can be potentially dangerous, such as being aggressive towards others or causing harm to themselves, such as banging their heads off walls. To prevent these and other behaviors, one technique parents and educators can use to control autistic tendencies is self-management. Giving the child power over him- or herself is often the key to keeping control over violent situations and may be a positive step towards learning other behaviors as well.

Self-management works because the child is no longer fully controlled by others. By teaching self-management during specific times of day, such as while the child is at school or therapy, the child will be more likely to continue to practicing self-control during all times of the day. The key is to implement a program in which he or she monitors his or her own behavior and activities. Begin with short amounts of time, and continue to monitor the child from a more passive standpoint. Every ten to fifteen minutes remind the child that he or she is in control and needs to monitor and be aware of good and bad behavior.

This monitoring is a form of self-evaluation. When a child is in control, he or she may think more closely about behavior in the past and present. Set clear goals with the child-for example, an afternoon with no aggression towards others or a day at school with no self-injury. Every fifteen minutes ask the child how he or she is doing. Is the goal being met? If the answer is no, perhaps the child is not ready for self-management, or perhaps the goals are too unattainable. You want to make sure that the goals are easy to reach at first, and then move the child towards more difficult goals in the future. When a child is successful at self-monitoring, he or she will have a more positive attitude towards the experience.

Of course, an important part of self-management is a rewards system. Have the child come up with his or her own reward, depending on interest. Reinforcement will make these good behavior goals more clearly marked in the child's mind, and by choosing and rewarding him- or herself, the child will feel completely in control of the self-management system. Choose simple rewards to start, such as smiley faces for every goal met and sad faces for every goal not met, and work up to a larger goal, such as a special activity or new toy when a certain amount of smiley faces has been attained.

These types of programs do not develop overnight, so it is important that you and the child have enough time to devote to a self-management experience. By reinforcing good behavior with rewards, as determined by the child instead of by an adult, he or she will be more likely to carry this on even when not participating in the program. If your autistic child is mature enough, this could be a good treatment program to try.